ADRC Databse Available Data and Dictionary
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| Variable / Field Name | Field Label | Choices, Calculations, OR Slider Labels |
|---|---|---|
| deceased_status | Deceased status | 1, Yes | adrc_study_id | ADRC study ID | scmd_study_id | SCMD Study ID | udall_study_id | Udall study ID | leads_study_id | LEADS Study ID | acad_study_id | ACAD Study ID | study_tracking_notes | Study Tracking Notes | coviddone | COVID Vaccination Documentation Have you received one or more doses of the COVID vaccine? | covid1st | When did you receive your first dose? | covid2nd | When did you receive your second dose? | covidboost | Booster Shot | covidboost_2 | Second Booster Shot | age(enrollment) | Age (years) | ethnicity | Ethnicity | 1, Hispanic or Latino | 0, NOT Hispanic or Latino | 99, Unknown / Not Reported | ethnicity_origin | If yes, what is the origin? | race | Race | 0, American Indian/Alaska Native | 1, Asian | 2, Native Hawaiian or Other Pacific Islander | 3, Black or African American | 4, White | 5, More Than One Race | 99, Unknown / Not Reported | race_additional | Additional Race | primary_lang | Primary Language | 1, English | 2, Spanish | 3, Mandarin | 4, Cantonese | 5, Russian | 6, Japanese | 8, Other primary language (SPECIFY) | primary_lang_specify | Primary Language SPECIFY | sex | Sex | 0, female | 1, male | 99, other | handedness | Handedness | 0, left | 1, right | 2, ambidextrous | education_yrs | Years of education completed | date_visit | Date of visit | visit_ty | Type of visit | 1, 1 Initial Visit Packet (IVP) | 2, 2 Follow Visit Packet (FVP) | 3, 3 Telephone Follow-up Packet (TFP) | contact_agreement | Agree to be contacted for other research? | 1, Yes | 0, No | oth_trial | Is the participant currently in a clinical/drug study? | 1, Yes | 0, No | if_yes_trial_su | Is the clinical/drug trial at Stanford?? | 1, Yes | 0, No | no_su_trial | Where is the clinical/drug trial being conducted? | yes_oth_trial | What is the name of the study or/and drug or/and type of drug or what intervention is studied? | oth_study | Is the participant is currently on in another study (not clinical/drug trial)? | 1, Yes | 0, No | if_yes_study_su | Is the study being conducted at Stanford? | 1, Yes | 0, No | no_su_study | Where is the study being conducted? | yes_oth_study | What is being studied or name of study | age_at_visit | Age in years | height_at_visit | Height (cm) | weight_at_visit | weight (kilograms) | bmi_at_visit | BMI | round(([weight_at_visit]*10000)/(([height_at_visit])^(2)),1) | primary_dgn_prelim_cat | Primary Diagnosis (preliminary) | 0, Healthy Control | 1, Mild Cognitive Impairment | 2, Probable Alzheimer's Disease | 3, Possible Alzheimer's Disease | 4, Lewy Body Disease | 5, Parkinson's Disease only | 6, Parkinson's Disease and Mild cognitive impairment | 7, Parkinson's Disease and Dementia | 8, Other | 9, w/Concerns | 99, unknown | primary_dgn_prelim_concerns | Concerns (preliminary) | 1, Language | 2, Attention | 3, Executive | 4, Visuospatial | 5, Memory | 99, Other | primary_dgn_prelim | Notes on Primary Diagnosis (preliminary) | primary_dgn_consensus | Primary Diagnosis (consensus) | 0, Healthy Control | 1, Mild Cognitive Impairment | 2, Probable Alzheimer's Disease | 3, Possible Alzheimer's Disease | 4, Lewy Body Disease | 5, Parkinson's Disease only | 6, Parkinson's Disease and Mild cognitive impairment | 7, Parkinson's Disease and Dementia | 8, Other | 9, w/Concerns | 99, unknown | secondary_dgn_consensus | Secondary Diagnosis (consensus) | primary_dgn_consensus_concerns_2 | Concerns (consensus) | 1, Language | 2, Attention | 3, Executive | 4, Visuospatial | 5, Memory | 6, Mood/Behavior | 99, Other | date_dgn | Date of Diagnosis (consensus) | notes_dgn | Notes on Diagnosis | study_consent_form_1 | Study Consent Form 1 | 1, Healthy Brain Aging Study | 2, Pacific Udall Center Study | 3, Consent for Study Partner | 4, ADRC eConsent form | 5, ADRC Spanish eConsent form | 6, PUC eConsent form | 10, ADRC eConsent | 20, ADRC Spanish eConsent | 30, LB-SPARK eConsent form | 40, LB-SPARK Spanish eConsent form | date_of_consent_1 | Date of consent | consent_form_1 | upload consent form | study_consent_form_2 | Study Consent Form 2 | 1, Healthy Brain Aging Study | 2, Pacific Udall Center Study | 3, Consent for Study Partner | 4, ADRC eConsent form | 5, ADRC Spanish eConsent form | 6, PUC eConsent form | 10, ADRC eConsent | 20, ADRC Spanish eConsent | 30, LB-SPARK eConsent form | 40, LB-SPARK Spanish eConsent form | date_of_consent_2 | Date of Consent | consent_form_2 | Upload consent form | study_consent_form_3 | Study Partner Consent 1 | 1, Healthy Brain Aging Study | 2, Pacific Udall Center Study | 3, Consent for Study Partner | 4, ADRC eConsent form | 5, ADRC Spanish eConsent form | 6, PUC eConsent form | 10, ADRC Study Partner eConsent | 20, LB-SPARK Study Partner eConsent | 30, LB-SPARK Spanish Study Partner eConsent | date_of_consent_3 | Date of Consent | brain_donation_consent | Brain Donation/Autopsy Consent | 1, Brain Donation/Autopsy Consent | brain_donation_date | Brain Donation/Autopsy Consent Date | consent_form_3 | Upload consent form | study_consent_form | Study Consent Form | consent_date | Date of consent | consent_form | Upload consent form | consent_notes | Notes on Consent | nacc_completed | NACC forms completed? | uds | UDS form uploaded to NACC? | 1, Yes | 0, No | neuroexam | Was a neuroexam performed? | 1, Yes | 0, No | neuroexam_by | Neuroexam performed by: | exam_format | How was the exam conducted? | 1, In-Person | 2, Virtually via Zoom | neuro_dt | Date of neuroexam | cog_test | Was a cognitive test performed? | 1, Yes | 0, No | cog_test_by | Cognitive test performed by: | cog_test_dt | Date of cognitive test | fn_assessment | Was a functional assessment done? | 1, Yes | 0, No | fn_assessment_by | Functional assessment performed by: | fn_assessment_dt | Date of functional assessment | caregiver_survey | Was a caregiver burden survey done? | 1, Yes | 0, No | caregiver_survey_by | Caregiver burden survey given by: | caregiver_survey_dt | Date of caregiver burden survey | blood | Was blood drawn? | 1, Yes | 0, No | blood_by | Blood drawn by: | blood_fast | Fasting or non-fasting at blood draw? | 0, non fasting | 1, fasting | blood_dt | Date of blood draw | blood_tm | Time of blood draw | blood_dt_lastmeal | Date of last meal | blood_tm_lastmeal | Time of last meal | urine | Was Urine collected? | 1, Yes | 0, No | urine_by | Urine collected by: | urine_fast | Fasting or non-fasting at urine sample? | 0, non fasting | 1, fasting | urine_dt | Date of urine collection | urine_tm | Time of urine collection | urine_dt_lastmeal | Date of last meal (urine collection) | urine_tm_lastmeal | Time of last meal (urine collection) | skin_biop | Was a skin biopsy taken? | 1, Yes | 0, No | skin_biop_by | Skin biopsy taken by: | skin_biop_dt | Date of skin biopsy | skin_biop_tm | Time of skin biopsy | stool | was a stool sample taken? | 1, Yes | 0, No | stool_by | stool sample taken by: | stool_dt | date of stool sample | stool_bloodkit | was the additional stool and blood kit for AGMP sent? | 1, Yes | 0, No | stool_by_2 | Additional stool and blood kit for AGMP sent by: | date_kit | Date stool and blood kit sample for AGMP was sent to participant | code_kit | Code number of kit | code_kit_2 | Confirm code number of kit | agmp_notes | Notes: | ncrad_date | Date kit was received by NCRAD | warning | warning_2 | agmp_received | Date AGMP samples were received | actigraphy_watch | Was an actigraphy watch given? | 1, Yes | 0, No | actigraphy_watch_given_by | Actigraphy Watch Given By | actigraphy_id | Actigraphy Watch ID | actigraphy_date_given | Date Actigraphy Watch was Given | actigraphy_date_received | Date Actigraphy Watch was Received | oximetry_watch | Was an oximetry watch given? | 1, Yes | 0, No | oximetry_watch_given_by | Oximetry Watch Given By | oximetry_id | Oximetry Watch ID | oximetry_date_given | Date Oximetry Watch was Given | oximetry_date_received | Date Oximetry Watch was Received | lp_attempted | Was a LP attempted? | date_lp_attempted | Date LP Attempted | lp_attempt_notes | LP Attempt Notes | csf | was a CSF sample taken? | 1, Yes | 0, No | csf_by | CSF sample taken by: | csf_fast | Fasting or non-fasting at CSF sample collection? | 0, non fasting | 1, fasting | csf_dt | Date of CSF sample | csf_tm | Time of CSF sample | csf_date_lastmeal | Date of last meal (CSF) | time_last_meal | Time of last meal (CSF) | csf_saa_result | CSF SAA Result | 0, NOT DETECTED | 1, Indeterminate | 2, DETECTED | mri_sched_notes | MRI scheduling Notes | mri | was an MRI conducted? | 1, Yes | 0, No | mri_by | MRI conducted by: | mri_dt | Date of MRI | pet_sched_notes | PET scheduling Notes | pet_results | Do you want your PET (amyloid) scan results? | pet_results_disclosed_ab | Have amyloid PET results been disclosed? | 1, Yes | 2, No | disclosing_adrc_faculty_ab | Disclosing ADRC Faculty Member | date_of_disclosure_ab | Date of Disclosure: | person_receiving_ab | Person(s) Receiving Information: | 1, Participant | 2, Participant Spouse/Partner | 3, Participant Child | 4, Other | other_receiving_info_ab | If Other: | mode_disclosure_ab | Mode(s) of Disclosure: | 1, In-Person | 2, Telephone | 3, Video Conference | 4, Email/Electronic Communication | 5, Written Communication | 6, Other | other_mode_ab | If Other: | pet_scan | Was an Amyloid PET scan done? | 1, Yes | 0, No | pet_tracer | PET tracer used | pet_by | Amyloid PET scan performed by: | pet_scan_dt | Date of amyloid PET scan | pet_scan_tau | Was a tau PET scan done? | 1, Yes | 0, No | pet_by_2 | Tau PET scan performed by: | pet_scan_dt_tau | Date of Tau PET scan | pet_results_disclosed_tau | Have Tau PET results been disclosed? | 1, Yes | 2, No | gait_test | Was a Gait and Balance test done? | 1, Yes | 0, No | gait_test_by | Gait and balance test conducted by: | gait_test_dt | Date of Gait and Balance test | updrs | was the UPDRS (unified parkinson's disease rating scale) measured? | 1, Yes | 0, No | updrs_by | UPDRS measured by: | updrs_dt | Date of UPDRS | autopsy_consent | Has the participant agreed to autopsy at the end of the study? | 0, Do NOT agree | 1, agree | autopsy_agree_dt | Date the participant responded to question about autopsy | autopsy_consent_note | Autopsy consent note | visit_note | General notes | additional_studies | Additional Studies | consent_res_sum_letter | Consent to get research summary letter | consent_res_sum_letter_dt | Date the research summary letter was sent | apoe_data | APOE | 1, 1=e3/e3 | 2, 2=e3/e4 | 3, 3=e3/e2 | 4, 4=e4/e4 | 5, 5=e4/e2 | 6, 6=e2/e2 | dna_position_num | DNA data position number | dna_plate_num | DNA data plate number | dna_notes | DNA data notes | genetic_vars | Causal Genetic Variants | 10, PSEN1 | 20, PSEN2 | 30, APP | 40, TREM2 | 50, MAPT | 60, GRN | 70, FUS | 80, C9ORF72 | 90, NOTCH3 | 100, GBA | 110, LRRK2 | 120, SNCA | genetics_vars_notes | Causal Genetics Vars Notes |